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Helpful Links

Ability Maine Listserv
http://www.abilitymaine.org/resource/links.html
This site provides Links and Listservs with information of interest to people with disabilities. The Ability Maine Listserv does not attempt to include all links and listservs identified, but does provide an address for individuals to suggest additions. The site provides connections to such resources as Disability Rights Advocates and The Maine Blind Listserv.

A-T Children’s Project
http://tinyurl.com/6fakqm
The A-T Children's Project is a non-profit organization that raises funds to support and coordinate first-rate biomedical research projects, scientific conferences, and a clinical center aimed at finding a cure, or life-improving therapies, for ataxia-telangiectasia, a lethal genetic disease that attacks children causing progressive loss of muscle control, immune system problems, and a strikingly high rate of cancer, especially leukemia and lymphoma.
The website provides many links that may be of interest to others with special health care needs and or disabilities.

Disability Information
http://tinyurl.com/6st6du
This site provides information and links to many services in Maine that may be of interest to individuals with special health care needs and/or disabilities.

Diversity World
http://www.diversityworld.com

Diversity World supports the belief that people with disabilities have a rightful place in our workplaces and that they have valuable contributions to make to our economy and that their participation rate in the workforce has been restricted by erroneous information, discriminatory practices, limited resources, and a resulting lack of opportunities.

The resources that gathered at this site are intended to help people with disabilities to improve their job search strategies and career development. They are intended to help employers improve their outreach recruiting, job accommodation, and employment practices. They are intended to help providers of education and employment services to be more effective at supporting people with disabilities in job and career development.

Going To Work: A Guide to Social Security Benefits and Employment for Young People with Disabilities (2009 Edition - PDF)
This booklet provides basic information about Social Security disability and health benefit programs, discusses what happens to Social Security disability and health benefits when a young person goes to work, and explains how to maximize a young person's options when he or she goes to work.

Harvard Project on Disability
http://www.hpod.org/
The Harvard Law School Project on Disability has published a Handbook with an easy to read explanation of the Convention on the Rights of Persons with Disabilities. This publication is designed for anyone wanting a clear explanation of the Convention, including people with intellectual disabilities, their organizations, and their advocates.

healthfinder. gov - Quick Guide to Healthy Living
http://www.healthfinder.gov

This is a new resource that uses everyday language and examples to:

• Tell users how to take action to improve their health using a "small-steps" approach;
• Give users positive reasons to change their behavior;
• Provide tools and encouragement such as personal health calculators, menu planners and recipes, tips for caregivers, and printable lists of questions to take to the doctor.
  

You also may try out the new "myhealthfinder" tool, which provides personalized health recommendations based on sex, age, and pregnancy status. This feature offers evidence-based recommendations from the U.S. Preventive Services Task Force, an independent panel of experts in prevention and primary care sponsored by the Agency for Healthcare Research and Quality.

Joseph P. Kennedy, Jr. Foundation Introductory Guide to How Policy is Made at the National Level
This guide is focused on people with disabilities and was made for its public policy fellows. There will be cd copies for some but it is available free to all at the link http://www.jpkf.org/JPKF-Policy-Guide/index.htm

LD Online: Accessible Textbooks: A Guide for Parents of Children with Learning Disabilities
http://www.ldonline.org/article/16308

Lesley University
http://www.lesley.edu/threshold/monthlink.html
This Lesley University provides information that may be of interest to Maine residents as it shares links that connect individuals in the Massachusetts areas to services and supports for individuals with special health care needs and or disabilities.

Maine 211
This Maine resource directory includes agency, program and service information.
http://211maineportal.communityos.org/

Maine Transition Network
http://www.mainetransition.org/youthleadership.html

• The Maine Committee on Transition supports youth with disabilities in making meaningful choices as they transition to adulthood by promoting collaboration within communities.
  
  What We Do:
  
  • Provide information and referral.
  • Build capacity within school systems to use student-centered planning.
  • Help people make community connections.
  • Collaborate with a variety of stakeholders to provide ongoing identified training.
  • Promote youth leadership regionally and statewide.

My Voice, My Vote
http://www.myvoicemyvote.org

This is a new website for young adults with disabilities
who want to learn about the voting process and make a difference in their communities. The site includes resources for voters in Minnesota and across the country, including the many different ways one can vote and what it means to be a good citizen. The website also includes this open-captioned video on the voting process:

The National Council on Disability
http://tinyurl.com/6mtffc

New England Center Deafblind Project
http://www.necdbp.org/Trainings.htm
The New England Center Deafblind Project (NEC) provides technical assistance to children who are deafblind in Connecticut, Maine, Massachusetts and New Hampshire, as well as to their families and educational programs. Perkins is the sponsoring agency and assumes overall responsibility for this multi-state project, which was founded in 1969. NEC's central office staff is housed on the Perkins campus, with satellite offices and staff located in each of the other states.

Partners for Youth with Disabilities
Mentoring programs that asist young people to reach their full potential.
http://www.pyd.org/

The University of Montana Rural Institute:
http://ruralinstitute.umt.edu/Transition/
The University of Montana Rural Institute has been a leader in the area of transition planning for youth with disabilities since 1995. Activities have included:

• Provision of education and training to schools, families, students and agencies;
• Development of innovative strategies and transition models;
• Demonstration, outreach and technical assistance, both on-site and long distance;
• Promotion of systems changes to support effective transition for youth from school to adult life; and
• Information dissemination.

Work Incentives Planning and Assistance (WIPA)
http:www.benefitsandworkinme.org
The website has general information about free WIPA services and eligibility, the statewide listing of Community Work Incentives Coordinators (CWICs), referral forms that can be printed and mailed to get an appointment, an online request for services form, information and materials for referring agencies and online resources for individuals with disabilities returning to work.

This grant is funded by the U.S. Department of Health & Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (award #D70MC06895). The grant was awarded to the Children with Special Health Care Needs program at the Maine Center for Disease Control and Prevention, Department of Health and Human Services. Project partners include the Maine Support Network, Maine Family Voices, and the Maine Chapter of the American Academy of Pediatrics.